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Hello.

I'm Jane McIntyre, a voiceover and writer, formerly an award-winning BBC radio newsreader and producer. My blog covers life, love and loss; travel, coffee and chocolate; with some heartfelt pieces in the mix about my late dad, who had dementia. Just a click away, I'm half of the team behind www.thetimeofourlives.net - two empty nesters who whizzed round the world in 57 days.

Showing posts with label Alzheimer`s. Show all posts
Showing posts with label Alzheimer`s. Show all posts

Thursday, 11 June 2015

Dementia..or dating? : the choice isn`t yours


Two ladies; both out for coffee; each with a companion. The one on my right was probably late seventies. Neat grey hair; polished nails, car keys in the pocket of the dusky pink bodywarmer on the back of her chair--an Audrey, probably. She talked animatedly to a lady of a similar age about a new gentleman friend. He was `on a lot of committees`; a widower, who`d loved to go dancing with his late wife. He`d told her they `both deserved some fun and some friendship, now ,` and she`d agreed. In fact--talk had turned to holidays; a cruise together, maybe. The friend nodded; made approving noises; pointedly stirring her latte in a lull as you might a wind-up radio...egging her on; keeping the confidences coming.

`Dolly` was a few tables away to my left, and a few years ahead; her wheelchair tucked in tight. The young woman opposite called her Nan, and gently encouraged her to try a corner of her scone, dabbed enticingly with butter and jam. The older lady`s expression hardly changed as she ate; almost obediently. No voice was heard. Her thoughts seemed locked away; her eyes, distant, as Dad`s had become, in the later stages of his Alzheimer`s, in the days when he could still just remember how to eat; and sip from an open cup.

Audrey favoured a route that took in Sicily, or somewhere like that, but they`d only just started looking.The onboard facilities these days were incredible. So, too, cabins with a balcony, but they cost a bit more. A pause; then a neat deflection of the inevitable question to follow: offering to pop up for a piece of flapjack for them both, and another drink--her treat; anyway, they had half an hour on the car park ticket.

Dolly was being encouraged to pick up her paper napkin and blot a splodge of raspberry jam from her chin; no, up a bit; no, hang on; her granddaughter would come round. Dolly leaned her face back and closed her eyes, childlike; trusting, as her skin was wiped clean; roles reversed.

Audrey edged past, tray laden with more coffee; the promised treats; a morsel more about the mystery man, maybe, for her waiting friend.

I got up to pay, needing, somehow, to connect with Dolly and her carer as I passed their table. It`s been a year since Dad died and I`ve avoided even glancing at people with dementia...it`s hurt too much. I knew what a major effort it must have been to get Dolly ready; to explain to her what the morning had in store. And I knew, for both of them, what the months ahead have in store for them, too. My throw-away comment about the delicious scones in this place was met, as I guessed it would be, by a blank expression from Dolly; food consumed five minutes ago, forgotten. She turned, instead, to the familiar, for now, face of her granddaughter, and told her they probably needed to go back and get ready for bed.

A look back as I left, took in Audrey`s friend, agog now, stirring her coffee briskly; excitedly, to a stiff froth. And Dolly being told gently that she was just confusing night and day again; the way she did sometimes.

Two people.Two parallel lives. And how they can diverge, for all of us, with one roll of the dice.



+I wrote about Dad`s dementia pretty much all the way through its progression, to his death last year. Please click on the `Dad has dementia` link on the right hand column for more. Or click on the other stuff...about chocolate, or holidays, or being a TV extra....or that French bloke on the beach in Nice. Thanks for dropping by!


Comments on Twitter: Thanks for these, and the retweets :)

This is a lovely post. And the last sentence sums it all up. x

Beautifully observed, Jane ....


So concise & poignant, it might be a short story, via

Isn’t it wonderful? The juxtaposition of the two fit and able ladies with the dementia sufferer works so well.

Yes - I read this when you tweeted it earlier & can't stop thinking about it. Incredibly effective


Monday, 8 December 2014

First Christmas without you...


Musical curve-ball on the South Bank
First Christmas without a loved one? Here were my thoughts a few months after Dad died. It does get a bit easier, with time. But the key's thinking about the memories and real gifts loved ones leave you. Anyway....five years on...hope this helps.


I knew I`d hear it sooner or later.

And there it was. Pumping out of a crackly speaker from one of the festive stalls on the South Bank in London. "Have yourself a merry little Christmas"--Dad`s favourite song. It's seven months since he died; and so we're heading fast towards the first Christmas without him. He used to shed a tear when he heard it. And even though Alzheimer's caught him; changed him; challenged him to remember even his daughters' names, he'd still smile when he recognised that tune.

Still; hearing it was a bit of a punch in the heart, and so, at lunchtime, in the middle of the Millennium Bridge, I found myself in tears. Luckily, the keen winter wind was leaving everyone with smarting eyes and runny noses.... so I guess I got away with it.

But maybe you've felt it too? The first anniversary, birthday, New Year celebration without someone you've loved so much...someone who's been such a central part of your life? I've found myself smiling at cards he might have liked; touching soft, warm jumpers that would have kept him cosy.


High in the Himalayas
I decided I could wallow in sadness, linger longer over my loss this Christmas, think about gifts unexchanged. Or focus on the gifts that will always be there. We've just cleared his house, so there are plenty of reminders. Detailed travel itineraries for royal trips to Tonga, San Francisco,the Congo, Mustique,Tasmania, Nepal. Just the mention of those faraway places excited me as a small child; filled me with wonder about what he'd find. And so my hunger for travel was born.

Then there are books...everywhere. Boxes and boxes have gone to charities across Kent. Yet there are still piles of the ones I couldn't part with on the stairs, under tables, on top of groaning bookshelves. The classics. More
travel. Grammar. Quotations. And poetry. Wordsworth, Masefield, a collection of Burns with a lock of blonde hair between two pages. The joy of learning, and, for the young man who'd left school and gone down the mines at 14, a hunger to read; nurtured as soon as my sister and I could turn a page. Another gift forever. Letters talk of his kindness; his selflessness. Press cuttings report his bravery at 24. More valuable traits to treasure.
Harrow and Wealdstone hero


Oh.....and the hats. How we laughed as Dad--the 'inconspicuous' royalty protection officer in a top hat-- made it to the middle of the shot on a Telegraph front page. And he laughed at himself too--always a good thing to be able to do. But was fiercely proud of his job, and its responsibilities. Check. And check.

Top hat and gun. *Blending in*

Anyway, just as I'd got over the London tears, the song came galloping back last night, at a Christmas concert. Thoughts of Dad filled my head. They insisted we all joined in. And so I sang along.....smiling, this time, at sweet memories of a big, strong, brave man, and the incredibly precious gifts he left us with. Including, as I fumbled for a 'just in case' tissue,being in touch with your 'softie' side. Which was OK for him. And is OK for his daughters :)

Happy Christmas xx
Travelling: the next generation. Avec hat...

PS: And yep; I got to Tonga. And San Francisco. And more. Read about life, four years later, on 2emptynesters.com


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  1. Nicely written blog young lady. In some traditions one is "allowed" to grieve for a year, so that all annual events 1/2
    are passed & reviewed for the future with the significance of the involvement of the deceased, holding onto the good!
A Very touching read.We have our first year Anniversary tomorrow. X

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favorited your Tweet# and 3 others retweeted you

aah that's lovely x Onwards with great memories

       
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<3 jane="" p="" said="" well="" xx="">

you have done him justice xx

Beautifully written. And will chime with so many.

For obvious reasons I have not read it...yet

It may be hormones or incipient cold but you’ve just made me cry. And I mean that in the nicest possible way! *hugs*


Thursday, 6 February 2014

A Baked Alaska day



You`ve eaten Baked Alaska, right?

You get icy ice cream and sponge, surround it with meringue, and shove it in the cooker. Crazy, but true.The ice cream has to emerge still icy and firm, even though it`s surrounded by piping hot (yet soft) meringue. A moment too long in the oven and it`s game over, basically. Get it right, though, and it`s sweet, and memorable.

I realised some time ago that you can have Baked Alaska days, too. The cold, ice creamy bits are those chilling or depressing experiences that can stop you in your tracks. Bad news, maybe. A cruel word. But then something happens on that same day: a gesture or a show of affection which warms and comforts you, so that, looking back, it`s all good.

Yesterday was pure Baked Alaska.

It started at Dad`s house. He`s in bed 24/7 now as his Alzheimer`s marches on. He needs help with everything. I love to see him, but it breaks my heart every time. I help to feed him but I always want to cry and sometimes do, standing beside this once strapping, now frail former royal bodyguard, as he waits meekly for the next spoonful.

Anyway, my sister and I popped in to see him at breakfast time because we were going out for the day, leaving him at home with his partner and his visiting carer. We were going to the funeral of a dear uncle, our late mum`s brother. Dad had known him well for many years.Vic was the same age as Dad, and died after a long struggle with ....Alzheimer`s. Dad didn`t ask why we were dressed in black, or where we were off to. And we didn`t say.

Your first glimpse of the coffin at a funeral is always the worst bit, isn`t it--your unwitting gasp; the sight of the people who are feeling the loss most painfully.The moment of farewell can be chilling. Numbing.

And somehow, even funeral days can improve as the minutes tick by. Hearty renditions of `Love Divine...`. Loving tributes. Shared memories. Warm hugs with dear family members you haven`t seen for ages.Yes, and a stiff drink can help. I`ve said before that you can`t choose your family, but if you could, this is the one that I`d choose. From baby Alex, to a dear Aunt who`s nearly ninety; we`d come to say goodbye to Vic, and hello again to each other; refreshing that common bond; and the unspoken understanding that we`re there for each other, and proud of each other.There were tears, and some uproarious laughter too. And out of the blue, Ted, an elderly relative I`d never met, whose stories were vital new pieces in the family history jigsaw.

So...a day with sadness, and the cold, hard reality of loss. And wrapped around it, the love of a special family, as cosy and comforting as a warm blanket in winter.