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Hello.

I'm Jane McIntyre, a voiceover and writer, formerly an award-winning BBC radio newsreader and producer. My blog covers life, love and loss; travel, coffee and chocolate; with some heartfelt pieces in the mix about my late dad, who had dementia. Just a click away, I'm half of the team behind www.thetimeofourlives.net - two empty nesters who whizzed round the world in 57 days.

Wednesday, 19 July 2017

Yes: Cry for Matthew. Just don`t forget him.


Heard about the CRY charity? It works hard to spot potentially fatal heart problems in young people. Today, five years after his untimely death, I'm republishing my blog about Matthew-because he, like other young people who have died suddenly--needs to be remembered. Matthew's mum Sue Dewhirst is a leading light in the charity, and I was proud to meet her and moved forever by her story. Please read it, and think about whether someone special to you, should be screened. It could save their life.







Sorting out unwanted clothes for a charity sale was the easy bit.

Here's where it gets tougher: telling the story behind the event.

I'd read about Matthew Dewhirst; a 17 year old Shropshire student; highly accomplished at sport and music, and a loving, only son to Sue and Chris. He was also, I discovered, occasionally, 'class clown' to his mates.

With his talent for rugby and his passion for weightlifting, he might have hit the sporting headlines in years to come.

Instead, his name became known for being an apparently superfit teenager who collapsed and died during a pre-season rugby training course.

Handing over some clothes and sharing a coffee with Sue at the family home in St Martin's, she told me Matthew had shown occasional signs of health problems for years, such as fainting on the pitch and feeling chest pains. He'd been screened, tested and told he was dehydrated, stressed, or suffering from migraine.

Even when he felt unwell the night before he died, Sue found herself repeating the same old medical advice to him: 'You know what the problem is, Matthew,' she`d told him.'You HAVE to drink more'.

The next day: in July 2012, news came which would change their lives forever: Matthew had collapsed and died suddenly--one of 12 young people who do so every week in the UK because of undetected heart problems. Like the cases of presenter Gabby Logan's young brother Daniel, who died during a kickabout with his footballing dad at 15, and the nearly fatal,78 minute collapse of football player Fabrice Muamba, no heart condition had previously been spotted.

It's hard, whether you're a parent or not, even to imagine the pain of losing a child. It's arguably even more devastating to consider that kind of grief when, as Sue and Chris did, you've gone through nine IVF attempts to conceive that precious child in the first place.

'I remember, just before getting pregnant, being at the IVF clinic and the consultant saying he was hopeful this latest attempt would work,' Sue said. 'He told me things had been going well with his patients. He was "on a roll".'

Sure enough, Matthew followed; and was soon mastering, then excelling at most things he attempted: from sport, to maths, and music. I suggested he sounded really special: a golden boy.

'He could be a little sod at times,'Sue laughed, eyes sparkling, regaling stories of Matthew's seemingly endless energy, his need to be active, his stubborn streak. Always, though, happy, loving and loved.

 I'd covered every kind of story as a journalist, but had still arrived here with a precautionary tissue up my sleeve. With a 17 year old of my own at the time, I had absolutely no plans to ask Sue 'how it feels' to lose one. I didn't have to. She told me that days after Matthew died, a doctor insisted that 'no one could have done anything'. They got, she assured me, 'both barrels'.

Sue and Chris run their own architectural design company, but Sue had always found time to be a charity supporter and organiser too. Since Matthew died, she's thrown her skills, positivity and any gaps she has between business trips, into CRY--Cardiac Risk in the Young. She's delivered talks and helped arrange sales, sporting and social events, netting more than £40,000 in the process.

This small charity battles hard to raise awareness of undetected heart problems; and to offer screening sessions around the country, supported by cardiac specialists who give their time to carry out the tests. If problems are spotted, help can be given; lives, potentially, saved--the charity claims that its tests find many more potential problems than conventional screening can.

Each test costs £35, or a donation on the day. To keep them running, CRY needs funding; cake sales, evening events, walks, runs, clothes sales....money raised is saving lives.

As our chat ended, a glance round the couple's immaculate home shows every superficial sign of 'business as usual'.Two lively, happy dogs, waggily post-walk; grinning at me through glass doors. Talk of a possible round of golf that afternoon. A heavy bag of delicious garden-grown veg that I'm handed to take home.

Sue's hoping as many people as possible will support CRY fundraisers. But she has another wish too: for people to remember Matthew's story--and to push for heart screening if they're worried about symptoms-- especially if they're playing sport regularly.

Maybe that's something you could help with? Tell people about CRY. Find out about screenings this November, and again in May and August next year. Retweet this blog if you can. And always remember Matthew.

Thankyou.


 CRY UK. FIND OUT MORE AT www.testmyheart.org

COMMENTS AND INTERACTIONS ON TWITTER ABOUT THIS BLOG:


Thank you for keeping the memory of Matt alive.


 and 7 others retweeted you
           

Important stuff. Young lad on my friend’s corridor in Halls of Residence died in the night with similar complaint. Only 19.

well that made me sit up, listen and take note. With best wishes to Sue x

Met friends of friends at a wedding last week who've gone through the same with their 12yr old last year... Horrendous. X

Absolutely! Here in Belgium they've recently set up a programme for kids to be tested. Great idea. X
  1. thanks for the blog RT, James. Much appreciated.
  2. Not at all. It's something important and more awareness is needed.
  1. you're welcome. One of my little brother's friends died of an unexpected heart condition a couple of years ago during PE.
  2. that's the third such case I've heard today just among Twitter friends since publishing my blog. Shocking.
 and 5 others retweeted you
1h:
12 young people are dying every week from undetected heart problems. Please read about Matthew+help spread the word.
         
  1. thanks again, Karen. Lots of people have read Matthew's story today, thanks to RTs from you & others .
  2. beautifully written piece and an incredibly worthwhile cause being bravely brought into sight and mind.


made me sit up and read it. Thoughts are with Sue and her family x

 and 11 others retweeted you
5h:
12 young people are dying every week from undetected heart problems. Please read about Matthew+help spread the word.
               

  1. My mum had hypertrophic cardiomyopathy. Hocom. Had to have a difib fitted. Gave her an extra 10 more years :-)

    Tweet text
  2. how scary. But great that help was there. Thankyou.
  3. She used to pass out. I'd hope she'd still be there when I came home from school. Hurrah for medical science! :-) x

+Find about more about Cardiac Risk in the Young here:

+And try and get along to support CRY events if you can:









Wednesday, 21 June 2017

Mum's Gone to Glasto. (But was once enough..?)


Yes...it was three years ago. And yes, I loved it! Why...and then what?

The Mud: I'd heard about it. But went anyway. And while there was plenty of the squelchy stuff for a couple of days, the sun shone too, so the mud turned to clay. People wore wellies. And the bands played on.

The Music: Imagine the world's biggest pick 'n' mix candy counter. But instead of sweeties, you get the most varied range of music of every shade, every genre. Just pop them all in your Glastonbury bag and shake them up a bit. And make sure there are a few you've never sampled before.

The Other Bits: It's more than music. There's a whole array of street theatre acts, poetry and film. A massive polar bear in the Greenpeace area. A marching kazoo band. Two Del-boy types offering to take your car keys and 'mind your motor'. Tea ladies gossiping round their trolley. A girl juggling knives while dangling upside down. Women on stilts. Men in kilts.

The Food: What can't you get at Glasto? It's as varied as the music. From vintage cream teas to Beirut street food. Noodles. Pies. Thai. Dig in.

The Tents: Every shape and size. Up close and personal. Our 'base camp' boasted three, of the pop-up variety. Up in seconds. Leaked like sieves.

The Cost: It seems like a lot, when you`re shelling out over £200 for a ticket. But I saw 19 acts over three days--with more music at every turn. I've totted up how much that would have cost me at individual gigs. Way more. And you got 'accommodation' here, too. Kind of :)

The Vibe: Friendly, smiley, positive-whether you're standing in a field mid thunderstorm, wading through a quagmire or queuing for food. The staff, marshals, stallholders all seemed to have time for you. Asked how it was going; who you'd seen. If you had the wrist-band, you were part of a special community, looking out for each other, helping when you could. Fantastic.

The Toilets: I've seen better. And I've seen worse--at motorway service stations in France, for instance. Look. The longdrops ain't pretty. And you may have to queue for a flushing loo. But pack your Andrex and your antibacterial hand gel...and get on with it. Unless you have an *en suite* in your tent, of course. Rumour has it that *some* had dinky funnels and Fanta bottles close by. And bright torches, therefore, obviously. You wouldn't wanna...well, quite.

The Sex: (As in the song by The 1975...) was one of the most memorable ones of the whole festival for me. Expose yourself, musically, to something new. Fantastic young, energetic band.

The Drugs: More than a 'little weed'.And plenty of other stuff too, it seemed, along with a reported drug related death. If it's not your scene, (and it's not mine) steer clear, but don't be surprised to see it.

The Rock n' Roll: See above.From the incredible energy of the Kaiser Chiefs and Kasabian, John Newman and
Ed Sheeran, to the enduring coolness of Blondie and Bryan Ferry, to Plant and the Pyramid packing Parton. Glastonbury veterans reckoned they hadn't seen the Pyramid field that full in years. Everyone loved 'Jolene'. The ground shook when she sang '9-5'.

The Daughters: Two. One in late teens at the time; one mid twenties. Cautious at first when I told them I was off to Glasto with a woman I'd only 'met' on Twitter...but were then helpful with a backpack loan; harem-pant advice (!) and one even Tweeted about her tinge of envy while I was there.

The Friends: You could do Glasto solo. But it seems more fun with friends. You don`t have to stay joined at the hip, after all. The Glastonbury App helps you plan your own 'gig list'--and you can go your separate ways, meet up again, compare notes and scoff 99s together in the rain. You'd be hard pushed to find better festival friends than Michelle and Meg, though. Not only did they guide me through my first Glasto; they shared their home nearby with me--and pretty much everything in it-- when the weather turned. Top act (of kindness), M & M. Thankyou xxx

Oh yes...and that question right at the top. Would I go back? Well ...loads has happened since then. Including whizzing round the world in 57 days (using toilets in some places that were WAY worse...) So....I'll be watching coverage on telly this year. And I never say never.... :)







Tuesday, 6 June 2017

Die laughing....




When I go, I would like to die laughing
(No, not right at this moment in time….)
But when my number’s up
Can it be down the pub,
Cracking jokes, as I croak,
With white wine?

Could I find a sure way to die laughing
With my feet up, in front of the box?
Could my heart go all racy
With some Gavin and Stacey
And then, when credits roll,
Could it stop?

And so, when it's my day to die laughing,
Could it be when I’ve reached 99….
…but still dancing with friends
Till the un-bitter end,
With bare feet, and red lippie, round mine?

Oh, and can all those I love, just die laughing?
No disease, no disaster, no shocks,
When they’re mellow, and old,
With a warm hand to hold
Knowing it’s time, without checking the clock?

Thanks.

Jane McIntyre.
June 6, 2017.






Tuesday, 2 May 2017

So I've just been out to support my local High Street.



I live in Ludlow, where retailers are facing punishing rate rises. Many are asking customers to sign counter-top petitions against the increases, which I've already done. There are some excellent independent stores in this medieval market town and some incredible produce at the local market, and I'm happy to support as many of them as I can.

But traders are facing a tough time. The local branch of HSBC is one of scores around country due to close down soon. And if twenty minutes in town today is anything to go by, things could well get tougher as customers choose to shop and bank online.

I needed to make three stops in town--for an item of make-up which my daughter can't source in Paris, which I'm taking out to her when I visit at the weekend. For two small gifts for friends. And for some euros, for the French trip.

....here's what happened.

First: the make up. It was a Boot's own brand item. But this is a small branch of the chain, and their stock is limited. This one wasn't available. I waited to speak to an assistant. She went online, and ordered the product under their 'Click and Collect' scheme. It probably would have been quicker to do this online from home...but anyway, it's due in store tomorrow. So I'll go back in.

Next: gifts for friends I'm seeing tonight. I opted for little boxes of handmade chocolates from a local store with a great range of confectionery.

Flavours selected and packed, I offered my card. Cash only. There was a cashpoint at the One Stop (I wish...) supermarket, a few doors down. I belted along--but  the machine outside was out of order. There's a post office at the back of the store, but the queue was long. I grabbed some washing powder, paid for it, and got cashback at the till. Then belted back for my chocolates. (Which look great.)

Last job : Euros, for my trip to Paris this weekend. Last time I needed some, I visited Thomson's travel agent in Ludlow. The woman who served me that time, was professional, speedy and charming, so I popped back in.

The shop was empty, except for the five uniformed, smiling, welcoming members of staff. Not sure which one to pick, I told the assistant in the middle that I just needed to buy some euros.

"Ah--we haven't actually got any at the moment," she explained. "We'll have some in on Friday."

This was Tuesday. I fly on Friday. I thanked them-- all of them-- and whizzed across the road to a branch of Nat West. It went like this:

Me: 'Hi--I just need to buy some euros, please.'

Assistant : 'OK--do you bank with us?'

Me: 'No, but my bank doesn't have a branch here.'

Assistant : 'Ah, OK, but we can only sell euros to our own customers, because we don't have a way of debiting your card, as you're with another bank.'

Me: 'Hmm. OK. So...if I whizz back outside, and withdraw cash from your machine, and come back in with it, can I buy some euros from you, please?'

Assistant : 'Well.....how much did you want?'

Me :'Only £75 worth.'

Assistant : 'I can't really, because you see, it's using our stock of euros, which are really meant for our own customers.'

Me : 'Yes but...there isn't a branch of my bank here.'

Assistant : 'You could try the post office'.
.
Me: 'I've been in there for something else. There was a very long queue and I need to get home now.'

Assistant :'Sorry.'

 BANK CUSTOMER AT ADJOINING TILL POINT ENTERS CONVERSATION.

Second bank customer : 'Hang on,' (waves bunch of euros at me as bank staff behind glass look on.....)--do you just want to buy some euros?'

Me: 'Yes'.

Second bank customer : 'I've just come in here to change mine back into sterling. Do you want to buy some from me ?'

Me: 'Yes please. I'll pop out to the cashpoint and get out £80 and we'll sort it out over there by the chairs...ok?'

So I did. We calculated a mutually acceptable exchange rate--better for both of us than she would have got over the counter. The bank customer wished me a lovely holiday. She continued on her way, and I came home to record a voiceover job.

For an online shopping app.

End of story.